Today I got a letter confirming Laila’s diagnosis of dyspraxia. The letter also stated that they would like to test Laila for ‘fragile x’ . I have honestly never heard of this and I am trying so hard not to Google this and worry myself more. Should I wait and see if it’s something to be concerned about or to prepare myself?! I just don’t know!
I also joined a dyspraxia support group, they have spoken alot about routine and organisation labels and tags, colour coding ect. I am not really sure where to start so If you guys have any tips on how to get into better habits please share with me! Kx
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Today started off rather pants, Just seems like everyone I met was out to irritate the he’ll out of me.
All changed after school when my eldest daughter came home super excited shaking a letter in my face. She’s been chosen to represent the school in a swimming gala and been told she’s one of the strongest swimmers in her year group. Her face was such a picture i could feel myself filling with tears of pride. As I’ve spoken about before, Laila has dyspraxia and she finds so many things a struggle. Especially when it comes to sports. I am so happy that she’s been recognised for her efforts because she has very weak muscles and gets alot of pain in her legs and back, in some ways it’s harder for her than others an she’s like me, one of the kids that never gets picked for anything, until today!! I just had to tell you all how excited we are!!
My daughter Laila turns 10 years old this month. When she was 5 we noticed her toe on her right foot wasnt growing straight and was causing her pain. Cutting a few years down abit, weve been told that it will be operated on once her feet stop growing. Because of the pain, Laila was sent to physio. By our second visit with a senior physio at birmingham childrens hospital, she had started to ask more questions about Laila. She has always been clumsy, unorganised/messy, kind of lazy, and abit ditsy, we say shes like a little disney princess in her own little bubble. She will take instructions quite literally. For example, if i asked her to tidy up her desk, she would just tidy up her desk and move all the mess to her bed or on the floor. Shes never been sporty, throwing amd catching can be amusing at times, shes a very stiff runner and doesnt seem to have much spacial awareness.
The physio wrote to our doctors who reffered her imediatly to the peadiatric clinic, to assess Laila for dyspraxia. Dyspraxia? I had never heard of it before. I had been getting so frustrated with Laila for her ways, i mean she was heading to middle school and i still had to remind her to put clean socks on. I thought was Laziness not for a moment did i think she may have a coordinational problem. That is actually classed as an actual disability.
My first feeling was guilt. How had i not known or picked something up sooner? All the times i had told her off for something that was possibly out of her control. Then the thought, i made her wrong, passed through my head.. was i to blame for her to have these issues?
She has been to one occupational therapy appointment for an assmessment and then our next visit to the peadiactric clinic, we were told to expect the paperwork to confirm dyspraxia within a month.
I had spoken to people who had to fight to get a diagnosis, yet after one assessment here we were. I felt so lucky i didnt have to fight to get her any help she needed. But i also felt sad, sad that she obviously was struggling more than i knew. She hides it well. Rarely complains. But im her mom, i should have known somehow.
They do want to do some blood tests to see if there is also any underlying muscle problem. But for now, this is where we are. Laila has dyspraxia. And she is a happy little girl in her own disney princess bubble.
My little lovelies and I have had a busy 18months or so. I passed my level 3 supporting teaching and learning course, i finally passed my driving test (yay!) We have moved house, new job, new school… and just as things started to settle down i received a 2 lots of news regarding my daughter. She got her place at a middle school close by, our first choice of school luckily. But she is still so young minded and innocent, it fills me with a sense of dread that she has to move on to this next stage of life. It was also followed by news that she shows signs of dyspraxia. This fired up a whole new set of worrys as i know very little about it. Even as i research, every case is different and individual so it is hard to find out what i can expect. We are now waiting upon a ocupational therapy appointment. I am egar to learn more on how i can help her, especially with the transition of the move to middle school in september. Any advice would be greatly appreciated!! Kx